CMTA STAR Appeal
I prefer to live life on the edge - the edge of my limits. I find my edge. I feel it for a while. And then I take the leap. I take a leap to see if I can beat that limit I have found. Sometimes I don’t succeed and instead have a hard landing. Other times the leap completely changes my perceptions of what I can do - what I am capable of achieving. For me, life is about finding - and beating - my limitations.
In 2004 I received a diagnosis of CMT - a progressive degenerative nerve disease. In 2007 I received a diagnosis of Ehlers Danlos Syndrome Hypermobility. In 2009 I decided that I needed to change my point of view about living with limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.
On this site I share my thoughts about all aspects of my life - from sport to the kitchen, from what I read in the newspapers to what I read from my doctors. You can read about how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine - and beat - my own limitations. And I hope that you can find a bit of inspiration to do the same.
From My Blog
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Write This Run: Mission Accomplished!
On Sunday I had the opportunity to speak at the Write This Run run blogger conference just outside of London. What a phenomenal event and phenomenal experience for me, and from what I’ve been reading it seems that everyone who attended felt the same.
I was contacted early this year by Laura Fountain of Lazy Girl Running to see if I would be more…