I prefer to live on the edge - the edge of my limits. I find my edge. I feel it for a while. And then I take a leap. A leap to see if I can beat that limit I have found. Each time I leap my perception of what I can do - what I am capable of achieving - changes. For me, life is about finding - and beating - my limitations.
In 2004 I received a diagnosis of CMT - a progressive degenerative nerve disease. In 2007 I received a diagnosis of Ehlers Danlos Syndrome Hypermobility. In 2009 I decided that I needed to change my point of view about living with limitations. I decided to see just how strong, fit and able I could become. So that if, someday, I were to decline, I would do so from a position of strength and with a lifetime of laughter and experiences that I would have collected along the way.
On this site write about all aspects of my life - from sport to the kitchen, from what I read in the newspapers to what I hear from my doctors. I share how I manage my health and well being, and about my approach to fitness and healthy living. You can support the efforts to find a cure for CMT. You can follow my progress as I seek to constantly redefine - and beat - my own limitations. And I hope that you can find a bit of inspiration to do the same.
From My Blog
September was CMT Awareness Month. I decided to use my blog to raise a bit of CMT Awareness by doing an “alphabet challenge” - blogging a letter / key word of the things I face with CMT and as an athlete with CMT. I didn’t make it through the full alphabet in September so I am continuing my challenge through October. Today is brought to you more…